Sickle cell disease: India funds research for its own gene editing therapy to tackle disease, but will it be affordable? | India News – Times of India

 Sickle cell disease: India funds research for its own gene editing therapy to tackle disease, but will it be affordable? | India News - Times of India

  • Sri Rupa Ray
  • The Times NetworkUpdated: December 23, 2023, 20:33 IST

Hematologist Dr Rishi Dhawan of AIIMS and Gautham Dongre, Secretary of NASCO, explored the logistics, infrastructure and awareness of the new treatment.

“Three hundred thousand people have been born. Sickle cell disease Every year in three countries — India, Nigeria and Democratic Republic of Congo. Two international companies have jointly developed a gene-editing therapy for the disease that has recently been approved in the UK. Most likely, it will cost more than $1 million per person. It is unclear how health care systems in the US and UK will manage this cost. And none of the worst-hit countries can afford that price. Therefore, developing a native gene-editing therapy product using the CRISPR platform that is affordable and accessible is of utmost importance for the treatment of sickle cell disease. And India should no longer be the recipient of innovation. It has the potential to be a driver.
He was a clinical hematologist. Dr. Rishi Dhawan From All India Institute of Medical Sciences, New Delhi. In the last 30 years, sickle cell disease has been diagnosed in more than 80 castes and tribes in India, particularly in the Scheduled Castes, Scheduled Tribes and Other Backward Classes. Most of them are either sickle cell carriers or patients with sickle cell anemia.

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